So how do we get through this with dignity and grace? Others around us don't understand that we can't keep up with them and many of us may feel unjustly criricized for not pitching in and doing more. That can leave us feeling isolated, frustrated, sad, and more stressed. You know, we can't wait until we are understood. I see so many women with fibromyalgia that have lost their partners, which is in part due to their illness. Our partners are with us for better or for worse. So what on earth happened to the "for worse". It's easy to be with someone during the good times. The question is "Who is by your side during the tough times?" And times don't get any more difficult than when there is a chronic illness that impacts your day every day. That chronic illness impacts those around us every day too so they are living a chronic illness with us. Is that what they signed up for? Is that what we signed up for? I see young people getting married and they share vows to be there for better or for worse. I always wonder if they know what that really means and are they serious about those vows? Today it's easy to run in the other direction when times get really tough. But that's the true test of character and conviction. Does that partner next to you stay the course? That's the true test of devotion too. That doesn't mean our partners don't get
Showing posts with label isolation. Show all posts
Showing posts with label isolation. Show all posts
Monday, October 1, 2012
Getting through the tough times
How are you today? I'm thinking about all of you all over the world that are so sick every day with this illness that persistently tries to chip away at our mind, body and spirit. Every single day feels like a contest and I'm often left wondering who will really win at the end of this race. I'm sure there are many days when the time is counted in hours and minutes. I know it can be that way for me.
So how do we get through this with dignity and grace? Others around us don't understand that we can't keep up with them and many of us may feel unjustly criricized for not pitching in and doing more. That can leave us feeling isolated, frustrated, sad, and more stressed. You know, we can't wait until we are understood. I see so many women with fibromyalgia that have lost their partners, which is in part due to their illness. Our partners are with us for better or for worse. So what on earth happened to the "for worse". It's easy to be with someone during the good times. The question is "Who is by your side during the tough times?" And times don't get any more difficult than when there is a chronic illness that impacts your day every day. That chronic illness impacts those around us every day too so they are living a chronic illness with us. Is that what they signed up for? Is that what we signed up for? I see young people getting married and they share vows to be there for better or for worse. I always wonder if they know what that really means and are they serious about those vows? Today it's easy to run in the other direction when times get really tough. But that's the true test of character and conviction. Does that partner next to you stay the course? That's the true test of devotion too. That doesn't mean our partners don't get
So how do we get through this with dignity and grace? Others around us don't understand that we can't keep up with them and many of us may feel unjustly criricized for not pitching in and doing more. That can leave us feeling isolated, frustrated, sad, and more stressed. You know, we can't wait until we are understood. I see so many women with fibromyalgia that have lost their partners, which is in part due to their illness. Our partners are with us for better or for worse. So what on earth happened to the "for worse". It's easy to be with someone during the good times. The question is "Who is by your side during the tough times?" And times don't get any more difficult than when there is a chronic illness that impacts your day every day. That chronic illness impacts those around us every day too so they are living a chronic illness with us. Is that what they signed up for? Is that what we signed up for? I see young people getting married and they share vows to be there for better or for worse. I always wonder if they know what that really means and are they serious about those vows? Today it's easy to run in the other direction when times get really tough. But that's the true test of character and conviction. Does that partner next to you stay the course? That's the true test of devotion too. That doesn't mean our partners don't get
Friday, September 7, 2012
Reviving a battered spirit
I have talked with others that suffer with fibromyalgia and I frequently find that these gentle, sensitive souls have been emotionally battered and bruised over the course of their illness. I have been thinking about the many challenges that we must overcome and the tremendous toll that these difficult challenges can have over time. I imagine that you, a person struggling with the challenges of chronic fibromyalgia, have endured many losses and harsh criticisms over the years. Those losses in combination with the harsh criticisms of others, including family members and healthcare professionals, during the most vulnerable time of your life have most likely eroded your spirit and self esteem. The grief and loss of losing your previously robust brain and body can be overwhelming as you struggle to maintain your identity and dignity. At a time when you need a solid, supportive partner the most, is when none may exist or your partner may have taken flight and filed for divorce. Friends frequently have difficulty understanding your limitations brought on by fibromyalgia and may make unkind remarks that further erodes your already battered spirit. Those friends frequently disappear over time. A fading support system coupled with the stuggle of searching for treatment where no definitive treatment currently exists, creates another layer of stressors and feelings of
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